I know that its been forever since I've posted, and I've had a darn good reason. Yeled has been undergoing a seemingly never-ending series of tests to determine the cause of his hypotonia. This has been a very stressful time for our family, as many of the causes of hypotonia fall into the category that I like to call the "Big-Bads."
Yeled has undergone appointments with numerous specialists (neurology, genetics, ENT, and more - unfortunately, hypotonia isn't his only issue) as well as multiple tests- x-rays, MRI, and bloodwork.
All the while, Yeled has been making amazing developmental progress. In the past six weeks he has pulled to stand, transitioned to sitting on his own, figured out how to sit without flopping over, and most recently- started clapping (YAY!). [Side note: he's clapping all the time- during diaper changes, mealtime, and the funniest- while nursing!]
Its been very hard looking at him and wondering what the future holds. No matter how many times the doctors used the term "mild," when talking about the Big Bads, mild didn't make me feel any better.
Well, today was the EMG. This was a test I was dreading, as every person who knows anything about it told me it would be very painful for Yeled. I was also expecting to hear bad news, and had already lined up an appointment for the next test in line- a muscle biopsy. It seemed that today would just be another step in our quest identify Yeled's particular Big Bad, and the faster we got to a diagnosis, the better. Not knowing has been awful. The build up has been gut-wrenching.
Tachlis... the EMG did not show anything wrong with Yeled's muscles!!!!
B"H, the doctor told us to cancel the biopsy appointment, and to come back in three months for a check-up. He doesn't think that Yeled has a Big Bad. Holy moly! To say that we couldn't believe our ears is an understatement. The relief is still sinking in.
I want to jump up and down.
I want to throw a party.
I want to thank G-d over and over and over again.
I feel like a giant weight has been lifted . I think I haven't stopped smiling all day.
I'm looking at Yeled in a new light and with new hope.